A little bit about me

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Hello! Welcome to my blog. My name is Sarah. I am a 25-year old girl and I have Spina Bifida. For those of you who don’t know it’s a birth defect in which bones of the spine don’t form properly around part of the spinal cord. Spina Bifida varies from person to person it can either be very mild to where you don’t even know a person has it, or it can be very severe to the point a person is in a wheelchair their whole life.

I walk with crutches to help me get around and see a specialist for pretty much every part of my body. You are probably thinking that’s depressing having to go to the doctor all the time. Actually, once you reach adulthood you only go as needed like as a regular person.

Crutches can sometimes be fun to have. When I was little I would use them to my advantage while playing tag. When I was ‘it’, I would run and stick out my crutch to tag someone. Not sure if that is considered cheating but that is how I played. Crutches can also be used as an extension for your arms when you’re too short. Can’t reach something? You can just knock it down with your crutch. Just don’t be in the way when it falls, or you could possibly cause some serious injuries.

I also use a wheelchair for long distances. When I first learned how to use it, I went down the ramp and just let go no one told me you had to slow down when going down a ramp so when I got towards the end of the ramp my chair flipped. I was okay because I was going to therapy at the time and they were teaching me how to fall. Once my chair flipped I took the appropriate actions and put my hands out, so I didn’t get hurt. It’s a good thing I was taught how to fall before I got a wheelchair.

I graduated from high school in 2011 and I’ve been looking for employment for several years but there has been no luck. I have gotten interviews but haven’t gotten a job offer yet. A non-disabled person can get a job without a problem in the same situation, but my disability makes it difficult for me to have the same opportunities.

So that’s why I’m writing this blog. I would like to spread awareness for other people with Spina Bifida, as well as for people with disabilities in general. I might not be the best writer, but I will try my best and at the very least I hope I can make a few people laugh.

7 thoughts on “A little bit about me

  1. Kimberly Markovich

    Sarah thank you for sharing what you go through day to day. You are an inspiration to me in your determination and will. I am so blessed to know you. I hope you continue your blog.
    Kim Markovich

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  2. Yvonne Rieckhoff

    I didn’t really get to know you like I did your sisters when our families carpooled together, but I always remember your smile. When I was with you and your family, everyone treated you like you were fully capable of doing anything and everything that the rest of us could–and that was surprising to me because I just didn’t know what to expect or how to accommodate you. I learned quickly, though, that you’re just like everyone else, just with a little extra hardware. 🙂

    I now have a disability, too, though people can’t see mine: I became blind at the age of 23. I am fortunate that I was able to continue teaching with Americorps, but now that I have finished my term I, too, am facing the difficulty of finding a job. And people treat me differently. I’m not a different person; it’s still me, but when I carry my cane, people no longer seee me, they see a disability. But when I was with my students, coworkers, and when I am with my family–people who know me–they tell me they forget that I’m blind, they treat me like a normal, capable person: because I am. People with disabilities are not UNable, we are OTHERabled. We need certain accommodations, yes, certain accessabilities, but the biggest challenge is in people’s lack of understanding. Not that people don’t care, but they just don’t know because nobody has ever taught them or they have never been around it. I love that you have started this blog. I think it is so valuable that you are willing to share your side of the story and willing to answer people’s questions without being offended that they don’t already know the answer. Good luck to you in this endeavor, and best wishes to you!

    Here’s a TED Talkvideo you might like to watch, too: https://www.ted.com/talks/aimee_mullins_prosthetic_aesthetics/up-next

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