Hello! Welcome to my blog. My name is Sarah. I am a 25-year-old girl and I have Spina Bifida. For those of you who don’t know, it’s a birth defect in which the bones of the spine don’t form properly around part of the of the spinal cord. Spina Bifida varies person to person – it can be either very mild to where you don’t even know a person has it, or it can be very severe to the point a person is in a wheelchair their whole life.
I walk with crutches to help me get around and see a specialist for pretty much every part of my body. You are probably thinking that’s depressing having to go to the doctor all the time. Actually, once you reach adulthood you only go as needed like a regular person.
Crutches can sometimes be fun to have. When I was little I would use them to my advantage while playing tag. When I was ‘it’, I would run and stick out my crutch to tag someone. Not sure if that is considered cheating, but that is how I played. Crutches can also be used as an extension for your arms when you’re too short. Can’t reach something? You can just knock it down with your crutch. Just don’t be in the way when it falls or you could possibly cause some serious injuries.
I also use a wheelchair for long distances. When I first learned how to use it, I went down the ramp and just let go. No one told me you had to slow down when going down a ramp so when I got towards the end of the ramp my chair flipped. I was okay though because I was going to therapy at the time and they were teaching how to fall. Once my chair flipped I took the appropriate actions and put my hands out so I didn’t get hurt. It’s a good thing I was taught how to fall before I got my wheelchair!
I graduated from high school in 2011 and I’ve been looking for employment for since but there has been no luck. I have gotten interviews but haven’t gotten a job offer yet. A non-disabled person can get a job without a problem in the same situation, but my disability makes it difficult for me to have the same opportunities.
So that’s why I’m writing this blog. I would like to spread awareness for other people with Spina Bifida, as well as for people with disabilities in general. I might not be the best writer, but I will try my best and at the very least I hope I can make a few people laugh.
Thanks for reading, and I’ll see you soon with a new post.
Life with Spina Bifida is a personal blog that is all about my life with a disability, chronic pain as well as encouraging hope and positivity for those who are suffering. You are not alone!