Hydrocephalus is very complicated and there is no quick fix when you start to have problems! Last April I started experiencing chronic migraines so I went to the doctor to see what was causing them. (If you are not familiar with this condition please visit my headache post for more information) After having several tests run they discovered my shunt tubing had broken off and that was what was probably what was giving me migraines! After having that repaired I noticed that my migraines had gotten better but I still was experiencing pain that I don’t usually experience! Writing blogs can be difficult when you experience chronic pain on a daily basis so here are a few tips on how you can get stuff done!
Only write on good days- If you are in excruciating pain don’t try to write a blog post! If you do that you are writing to get it over with not because you actually enjoy the journey! Any blogs that you have to force yourself to write are not going to be nearly as good than if you actually enjoyed it!
Physical exercise doesn’t necessarily help- “You should exercise more you will feel better.” Exercise doesn’t necessarily help but sometimes makes it worse if I am having a bad day. I can’t exercise as much as I would like because of my chronic pain so suggesting that I exercise more is not helpful advice. I understand you are trying to be helpful but instead of telling me to exercise more ask me if there is anything you can do to help!
Nothing is enjoyable– Activities that I used to enjoy such as playing the PlayStation 4 cause me pain so I lost interest in doing them. Instead of getting depressed that you can’t do those things find new activities that don’t cause you pain.
Take Tylenol/Ibuprofen – Tylenol does not touch my chronic pain so taking Tylenol is a waste of time. The only thing that usually helps with alleviating pain is rest, not Tylenol!
No energy?- Some of my blogs are better than others and that is because most days I have no energy and all the coffee in the world will not help! My chronic pain does not end at migraines but also affects my entire body! My entire body is sore all the time so it makes it very difficult for me to get motivated to get up and do something productive! Whenever I start moving I feel like I just worked out for three hours even if I didn’t or haven’t in several days! The nutrients that are in our foods help boost your energy levels and without them, you would feel very sluggish. Finding ways to boost your energy is hard enough with chronic pain don’t make it harder by not having a balanced diet!
Reward yourself- Motivating yourself to get important tasks done can be difficult when you have chronic pain. To make it a little more bearable reward yourself when you have achieved everything on your to-do list!
There is still so much doctors don’t know about the brain although I did have what the doctors thought was causing my migraines repaired they still didn’t go away! Finding the right treatment for my migraines can be difficult so that is why I never lose hope! Migraines can be difficult to treat and sometimes it takes time before they find an effective treatment that works best for you. Everyone is different so what works for your friend may not work for you! If you have any questions about how about how chronic pain affects blog posts please leave them in the comments below.
Life with Spina Bifida is a personal blog that is all about my life with a disability, chronic pain as well as encouraging hope and positivity for those who are suffering. You are not alone!